Andrew Smith MP signs Motor Neurone Disease Association's Charter.
The charter recognises the rights and priorities of people living with MND and their carers. MND kills five people every day, with half of people dying with 14 months of diagnosis. This terminal disease can affect any adult at any age. There is no known cure.
Unfortunately, this condition is still little understood and this contributes to many people with MND not receiving the care and support they need. The MND Charter has been launched with the aim to change this.
The five-point charter sets out what good care looks like for people with MND and their carers and is designed to raise awareness and understanding of this devastating disease.
Andrew said: "I am delighted to sign up to the MND Charter. I believe everyone with this devastating disease should have access to good services so that they can maximise their quality of life and die with dignity".
Mark Stone, a local constituent and person living with MND said: "Being diagnosed with a condition that is progressive, incurable and ultimately terminal is absolutely devastating - I have a young family and was only diagnosed earlier this year. There are many things about Motor Neuron Disease that are incredibly difficult, not least being most people's limited knowledge and understanding of the condition. Indeed, this is something that I can relate to myself, as I personally knew next to nothing about MND until this February.
Andrew's signing of the MND Charter means a huge amount to me, my family and my friends - as it helps break down barriers of ignorance, reinforces our rights and recognises the importance of ensuring fair, fast and necessary support for all of us living with - and ultimately dying from - this terrible condition."
The MND Charter, which has already received endorsements from leading medical institutions (including Royal College of General Practitioners, Royal College of Nursing, Association of British Neurologists, Royal College of Speech & Language Therapists, Chartered Society of Physiotherapy, College of Occupational Therapists, Help the Hospices and Rare Disease UK) aims to ensure people with MND and their carers have access to timely and appropriate information, care and services that allow them to maximise their quality of life and ensure they are treated with dignity.
Farah Nazeer Director of External Affairs said "The MND Charter aims to ensure that the needs of people with MND and the priorities for good care as set out in our charter are recognised and respected. We urge everyone to sign the charter to show their support"
For further information and to sign the MND Charter please visit www.mndassociation.org/mndcharter